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"There is no more lovely, friendly and charming relationship, communion or company than a good marriage."
--Martin Luther
Showing posts with label grief. Show all posts
Showing posts with label grief. Show all posts

Monday, 2 April 2018

Infertility Chat: Maybe I Don't Want To Babysit Your Kids

I've been on a blogging hiatus these past few months, but I'm back to talk about something that has bothered me lately. I've had a few instances where discussion of my infertility has led to responses such as the following:
"I bet you're a great babysitter!"
"You can babysit my kids!"
"If you lived closer, you could come and 'mom' my kids some time!"

I want to give benefit of the doubt that no one intended for these comments to be hurtful or inappropriate, but you know what, they are, and I'm going to unpack the reasons why.

Firstly, sometimes these people are joking. This falls into the same category of  the nudge-nudge "You can have my kids!" statements that I get occasionally. These are the worst kind of comments. Do not do this. My infertility is not a joke. The fact that you can have kids and I can't is not funny. I understand that this topic may make someone so uncomfortable, but that doesn't make it okay to laugh about it to somehow lighten the mood. There may be times when I lean on dark humour, but that is my own prerogative as the hurting, grieving person. If I am being serious and sharing a deeply personal grief, there is no call for you to make a joke, particularly one that is not really funny anyway. If you're that uncomfortable, it's far better to just say, "I don't know what to say. I'm sorry you're going through this."

Even if they are meant seriously, these comments turn the focus back on the person responding. I've shared something about my own personal grief, and instead of mourning with me or asking how they can be supportive, it's turned into an opportunity for ME to do THEM a favour (babysit their kids), while somehow be phrased like it's a gift to me. This is not okay. I am happy to help my actual friends, the people who have sat with me and listened to me and wept with me. If a genuine friend needs a helping hand with her kids, then I am happy to oblige, but presenting it like you are doing something super nice to me by "offering" the chance to do what your 16-year-old neighbour does for an hourly rate is not loving or kind.

I understand your train of thought. You think that spending time with children will fill that spot in my heart, will make me feel like an almost-mom, but the truth is that it might not. I help in the nursery at Bible study occasionally, and while it is sometimes fun, I almost always end up crying in my car afterwards because holding those babies just reminds me that I'll never hold my own babies. If being around other people's kids filled that void, I would just work at a daycare. In other areas of life, we understand that this mindset is silly. If a friend were out of work, you wouldn't offer to let them come to work with you for the day to experience what it's like to be employed. If a friend is single and depressed about it, you would never think to say, "Why don't you spend the day with my husband?" We understand that our friend doesn't want to just spend the day with a man, but is in fact wanting a long-term, committed relationship to someone they love. Likewise, my desire to be a mother is not because I just want to spend lots of time with children. It's about the family life that I had pictured for us, the relationships that would develop, getting to know a little person who is a bit like me and a bit like Gil and also something extra and unique, and watching that person grow and learn over a lifetime. An evening spent watching your kids while you go to the movies will not fill that hole.

I've said it before and I will say it again, but someone else's infertility is not your problem to solve. The absolute best thing you can do is listen and grieve, and ask if there is some way for you to offer practical support. Please allow me the agency to decide what will and will not be helpful to me in my own grief without deciding on my behalf that your suggestion is just what I need.

Friday, 21 July 2017

Eight Years, Four Years, One Year

Oh July, bringer of hot, lazy days and summer adventures, but with heat comes the danger of being scalded,, seared, or simply consumed in the fire so that nothing is left.

Eight years ago this week, I waited awkwardly in a shopping mall entrance to meet a man for dinner. Shortly after this, I spent a weekend with my mother at our family cottage, and during a canoe outing told her, "I might have met someone. I think I like him."

Four years later, the man from the shopping mall meeting, now my dear husband Gil, said to me, yes, let's have a child. Four years ago today, full of hope, I wrote down that it was finally Cycle Day 1, our first month trying for a child. Filled with hope, I envisioned a winter pregnancy, a spring baby. My imagined spring due date pushed forward to summer, then, autumn, then winter, then spring again.

One year ago tomorrow, I got the call from the clinic. Our cycle had failed. Our last hope. The dream was dead.

I thought that one day it would get easier, that one day I would start waking out without grief or pain. It hasn't. The sharp knife point of grief has dulled slightly, but infertility is still the air that I breath, day in and day out. It envelopes me and consumes me. It is my constant companion. I am infertility and infertility is me. I cannot imagine a life when I will not be aware in every moment that I wanted to be a mother, and I never could.

How do I keep going to face another July, and another? I don't know. I live by putting one foot in front of the other. I enjoy the good moments when they come, and I let myself grieve. I am kind to myself and try to be kind to others. I pray and worship and try to find my way in this dark valley of my faith. I look forward to months that are not July.

Friday, 28 April 2017

National Infertility Awareness Week: Listen Up!

This week is National Infertility Awareness Week, when bloggers, Facebookers, Instagrammers, etc., are encouraged to share their stories and raise awareness about the issues surrounding infertility. This year's theme is "Listen Up". I really like this theme as I've been extremely slowly making my way through a book called Living the Life Unexpected by Jody Day, which helps women come to terms with the fact that they will not have children (due to various reasons). One of the things Day says is that we need to be more vocal about our stories, because the stories of the involuntarily childless are often not heard. We hear all the miracle baby stories, but no one wants to hear the ones that don't end in pink lines or successful adoptions. Our stories make people uncomfortable, but it's precisely because of that fact that they NEED to be heard. We need to normalize the fact that some infertility stories don't have a happy ending.... Or maybe it's better to say: Some infertility stories end with a new and different definition of a happy ending, because I would say that learning to live on and find joy when your biggest dream has died is still a miracle story.

Why aren't we sharing our stories? Sometimes it's because we're embarrassed or ashamed, or because we think find it awkward to talk about something so personal, but other times, it's because we tried sharing and it didn't go well. We stopped sharing because when we said we were hurting and struggling, the response was "Parenting is hard, you know." We stopped because when we were exhausted from getting up at dawn for ultrasounds and anxiety-ridden sleep, we were told, "You don't know tired until you have kids." We stopped because when we had the flu, people said, "You're lucky you don't have kids, because moms don't get sick days." We stopped because when we opened up cautiously, needing love and support, we instead got every piece of advice under the sun and were peppered with questions about our choices like we needed to prove we'd tried hard enough to deserve pity. We stopped because when we sought empathy, we got one-upmanship. We stopped sharing because it felt like no one was listening. (In case you're wondering, all of these happened to me personally, and this is far from the most hurtful comments that I have experienced.)

So how do we change this? I believe many people want to be helpful, but their discomfort with pain and loss and sorrow leads them to say and do hurtful things. I think we start by LISTENING. Most of us like to think we're good listeners. It's not like we tune out all the time, or interrupt constantly, or just walk away, right? Right? I would say that a lot of people - myself included - are not actually that good at truly listening to our friends who are going through the deep water.

We're not really listening if we're jumping in to give advice all the time, or to tell stories of someone who we know - or maybe we know OF - who overcame infertility. Our friend needs someone to hear her story and love her amidst the pain. She doesn't need to know your Great Aunt Edna's tried and true pointers on how to get pregnant. She doesn't even need your Google search results, because she probably has done eons more research than you have.

We're not really listening if we're trying to find the silver lining for someone else. She will come to a point where she can find her own joys and silver linings, but they may not be the ones that YOU would choose. When we try to find someone else's silver lining, it often feels like we're making light of her struggles.

We're not really listening if we're talking a lot, plain and simple. The book of James says we should be "quick to hear, slow to speak", and the book of Proverbs says "Whoever guards his mouth preserves his life; he who opens wide his lips comes to ruin." Wise words from God's Word. It might seem like you're not doing much, but a physical presence, an impromptu card, or a "I'm so sorry" can often say what reams of well-meaning advice or miracle stories cannot. We know it's hard. We know you don't have the right words. You don't need to give me all the best words; just give me yourself.

I encourage you all: If you're infertile, feel free to be bold and share your story. We need to hear it. I need to hear it. If you're a family member or supporter take a page from Frasier Crane, call up your friend and say, "Hello Friend, I'm listening." And then just stop talking.

Saturday, 1 April 2017

Infertility Book Response: Avalanche

I've been reading a few infertility-related books lately, so I thought that I'd start giving a brief review/response to some of them in case readers are interested. I recently read Julia Leigh's Avalanche, a memoir of her experience going through IVF. You can find a thoughtful piece from the Guardian here. This piece is probably more of a personal response than a review, so read it accordingly.

For obvious reasons, I found it an emotional read. It's a strange book. Some parts are extremely personal - the story of her marriage collapsing, for example. Other sections feel very procedural; however, that's kind of the epitome of fertility treatment for me: You are going through what is potentially the most emotionally grueling experience of your life, and yet your body also feels like the clinical subject of a laboratory experiment. You weep on the subway and in the bathrooms at work, yet you calmly inject yourself twice a day as if measuring out Gonal-F dosages were just the way of things. In that way, I think Leigh really captured some of the absurd essence if infertility.

Leigh's lifestyle and character were so completely different from mine. I found it hard to relate to her impulsive and tumultuous marriage or some of her other choices. She had lovers and ex-lovers, even ones who were prepared to donate sperm for her. However, in some ways, I found her account refreshing. I've read too many infertility accounts that focused on the perfect, committed, loving couple facing the odds. You know, the ones who "deserve" to be parents, for whom everyone feels sad because "Any kid would feel lucky to have you as mom and dad." But who are those people? Not Gil and me. Okay, we rarely fight, and we are nothing like Julia and Paul, but infertility is grueling and tears apart even the most supportive of marriages. I liked seeing a real portrait of messy people in a heartbreaking situation.

I liked that Leigh conveyed the overwhelming amount of decisions that need to be made in infertility and the guilt that is associated with that: "If I don't do this test or that test or the embryo glue, will I always worry that THIS was the reason why I never had a child? I also liked that she questioned the odds she was given and asked for evidence.

Some of the critiques I've read of the book say that Leigh comes across as selfish and/or self-absorbed. Maybe so. It's easy to become obsessed and absorbed with the process when you're in it. Fertility treatment becomes your entire life. It's also easy to judge from the outside. I find that there is this pressure on those of us who are infertile to prove ourselves as deserving: of pity, of sympathy, of being parents. Regular people just get to have kids, but once you're infertile, you need to be a saint or else people shrug and imply that maybe your infertility is just the universe's way of saying you're not meant to be a parent. I've been interrogated about how many procedures we went through, and why we didn't do X, as though I don't get sympathy or grief until I've shown that I "tried hard enough", and only then will they be supportive. All that to say, maybe Leigh was selfish, but that didn't stop me from aching for her sad journey.

Would I recommend this book to others? Yes. In fact, I wish all my friends would read it, so that they could be better informed about the process and the odds. I've been told to "just do IVF", but I think Leigh's book shows both how difficult IVF is and how low the odds for success actually are. For my infertile sisters, I would say that this is a difficult book. I don't know if I could have related if I were still in the rose-coloured glasses stage when I was sure that I'd get pregnant eventually. Maybe it would have felt too disappointing. Now that I'm grieving what might have been, it's cathartic to know I'm not alone.

Some of my favourite quotes:
"I didn't want to tell people because I thought that unless they were involved in that world themselves they wouldn't want to listen. Or they would only half listen and so diminish my experience. Or they would ask questions that required explanations too complex for conversation. Or they would offer advice based on hearsay and a general theory of positivity. Or I would make them uncomfortable because of my proximity to the abyss. Hush, keep your voice down, don't mention it by name."
YES YES YES YES YES. This is my experience to a T.

"I'm an expert at make-believe. Our child was not unreal to me. It was not a real child but also it was not unreal. Maybe a better way to say it is that the unknown unconceived had been an inner presence. A desired and nurtured inner presence. Not real but a singular presence in which I had radical faith. A presence that could not be substituted or replaced."


Wednesday, 11 January 2017

My Dirty Little Secret

I have a dirty little secret: My house is a mess. Not like "Oh glory me, I haven't dusted the baseboards in days!" kind of mess, but a real mess. I mean, you've probably seen dirtier. It's not like an ecological disaster zone quite yet, but it's pretty darn filthy.

In addition to the dirt, my house is cluttered. Part of this is not my fault; my husband has a bunch of bins of old stuff that he has no time to go through, including reams of paper, and he tends to leave his clothes in a heap but wants to do his own laundry. Part of the clutter is due to the fact that I was in graduate school and working for a while, and the paper just piled up. I can make a bunch of excuses for it, but there is just clutter all over.

Part of the problem is that I kind of, sort of, maybe hate my house. I'm thankful for it, of course. Shelter is good, and we're fortunate to have a house in a crazy market. However, I hate my house because it's a constant reminder of what should have been. It was to be our forever home, with three bedrooms, so we could fill them with kiddos. Instead, I fill those rooms with stuff so that I don't have to think about the what ifs. 

The worst part about my nasty house is that it shames me. Or rather, it adds to the shame that I already feel, and that becomes a cycle. My mind tells me all the time that I'm a failure. I'm a terrible wife and a terrible woman. I can't have a baby and I'm not a great cook, so what kind of wife am I? The logical part of my brain says that it isn't true, that my husband loves me for who I am and doesn't think less of me for my struggles, but it's hard to believe that. That same logical brain tells me to cut myself slack, that I've been dealing with depression and acing school and volunteering as well as working, and it's okay to focus on surviving some days. Then I look at my messy house and the words just ring through my head: "Failure. Failure. Failure." And instead of cleaning and decluttering, my instinct is to hide under the blankets and cry, because I can't face the reality that once I clear it all out, I'll have to come to grips with the emptiness of those empty rooms that will never belong to a child.

On January 1, I woke up as a woman on a mission. I wanted to clean out this house from top to bottom. I wanted to sweep out all the things that had built up and that were overwhelming me, to stop being embarrassed to have someone drop in. Maybe it was getting past the difficult holiday season or hitting roughly six months since our last set of infertility treatments failed, but suddenly I needed change. Since that day, I've been taking it one day at a time. I bought a filing cabinet to attempt to fix the paper problem. I went through boxes of old paper and tossed most of the sheets that I no longer need for school. I scrubbed floors and I dusted. It's a long-term project, and I may never have that pristine house from the magazine, but I'm getting a little bit proud of my progress. Maybe one day I will graduate to being a real adult with a proper home.

Why am I sharing this story? It's embarrassing, right? I don't want people to know how messy I am. I guess I'm sharing it because maybe there are other people who are stuck in shame and loss and grief and need to know that they aren't the only ones who haven't scrubbed the kitchen floor in a long time. I needed you all to know that this grief I'm in is real and painful and nasty and all-encompassing, but I'm ready to be very real about it and not live in shame. I also want to advocate for us hurting people. It's easy to watch an episode of Hoarders and feel sorry for those poor people in their mess. It's not as easy to walk across the street and hug the hurting person who is in front of you. People like me are everywhere. We are in your Bible studies and in your book groups and at your workplace. We are embarrassed and ashamed of the mess inside our homes and inside our minds. I've had people - even my own mother - chastize me for the messy state of my house, and it didn't help. Instead it just told me, "Keep hiding." What I needed was love. I needed to be told that despite the mess, I was worth loving. So readers, if you aren't in the mess right now, keep your eyes open, because it might be your turn to tell someone that they are enough.

Thursday, 29 December 2016

2016: A New Hope or The Darkness Strikes Back?

This year. I can't sum it up in words, more like guttural utterances and tears, with a few profanities strewn in. On top of our personal crises, which included the death of my beloved Sadie and several rounds of failed fertility treatments, we had a number of celebrity deaths, Brexit, the Trump campaign, hurricanes, terrorist attacks, the growing crisis in Syria, and probably a lot more than I'm forgetting. The world feels darker now. My anxiety has been ramped up considerably. My coping has been shaky at best. Despite a couple of high points such as my graduation (which was somewhat marred by my cat's death the day before) his year will go down as a bad one in my life.

On Friday, I went to do something I had really been looking forward to: a friend date to see the film Rogue One. You see, I have been a Star Wars junkie since I was quite small. I grew up enjoying the exploits of Han, Leia, and Luke. Just before meeting my friend, I learned that Carrie Fisher had suffered a heart attack, and on Tuesday her death was announced, followed by her mother's death the following day. I grieve. I was then reminded of this post from one year ago today, when I was feeling low about the year that was, and found a sliver of hope in watching Star Wars, Episode 4: A New Hope. I wrote these words, which feel ridiculously optimistic after the year that we just experienced: "So maybe it's there, somewhere, that hope. Maybe I can find it and grasp it, if even for a little while."

Looking back on 2016, it feels less like A New Hope than The Empire Strikes Back. It feels like this year was spent fighting the darkness within and without. I did a year-long study of Revelation and then an autumn study on spiritual warfare, yet I feel more helpless than ever against the darkness. I feel like I'm losing and being closed in on all sides. I have prayed and sought and prayed and sought some more, but it's hard to find God in the darkness. As we close off the year, it feels like the Emperor is in charge, Darth Vader has the upper hand, and Han Solo is frozen in carbonite. All I can do is hold on to a tiny hope that this isn't the end and that this darkness will not define the rest of my life.

However, in a dark time such as this one, I am reminded that Carrie Fisher, too, struggled with dark demons, that many people consider her a powerful spokesperson for those dealing with mental illness. So in honour of Carrie, I will raise a glass to toast the end of the year that was, and go forward hoping and praying that this year will be the one when the tide turns, when the darkness ebbs, and when I find hope again. Perhaps 2017 will be the year when I learn how to fight like Princess Leia. May it be so, and may the Force be with you.

Wednesday, 21 December 2016

On the Term "Childless"

I've been thinking a lot about words lately. As a writer, words are important to me. There is a reason why we choose one synonym and not the other, why we say that something is 'gargantuan' instead of just 'big', for example. I myself have been known to prefer the term 'barren' because the former conveys the bleakness of my lost hopes in a way that the medical 'infertile' does not. Lately, as we ponder the life ahead of us, I'm wondering about 'childless' versus 'childfree'.

This is a polarizing topic. Those who choose not to have children often define themselves boldly as 'childfree', showing that they feel unencumbered by the societal pressure to have a family. It's something I admire, but I do not relate to. I do not feel like I belong among the 'childfree', those who are pleased to choose a life where they can go across the country on a moment's notice, trek the Andes, or just go for drinks after work without ever worrying about who will do the daycare pick-up. Moreover, my inability to conceive feels less like freedom and more like a millstone around my neck, dragging me to the depths, a perpetual burden. I do not think that I will ever view my lack of children as anything other than a lifelong grief.

On the other hand, there is the term 'childless'. Some people, particularly mothers, prefer this term because 'childfree' denotes a sense that to have children is burdensome. I sympathize, because I do experience my situation as marked by loss; however, I do not like those who have children deciding on the term that I - who cannot conceive - should use to define myself. More importantly, I do not wish to constantly define myself as 'less than'.

Those of us who have been in this position, pushing into the 30s with nary a stroller or a bassinet or a baby bump, have perhaps experienced the sense that at some point, their lack of children made them somehow 'less' than others. With phrases exalting a "mother's love" and a "mother's heart", and declaring that "moms are special people", we who are not mothers are defined as less loving, less compassionate. Our time is always less important; it is we the childless who should work late in the office and cover all the holidays. I hear this constantly as my husband consistently works almost every holiday in the year so that the parents in his practice can 'be with their families', as though I am not my husband's family, and as though Gil does not deserve to attend church on Easter like the rest of the doctors can. As though my punishment for being barren is that I should spend the next 20 years of Christmases alone while my husband works at the hospital, so that the deserving fertile people get to be with their families. We are told that our opinions and experiences are less meaningful when people throw around phrases like, "Well, you'll feel different about that when you have children." In churches, we are often an afterthought, the ones asked to teach Sunday school or hand out programs at the multitude of 'family-friendly' events; we are part of the body of Christ, but we're one of those less vital organs, like the appendix or the spleen. The moms - special as they are - get to be the heart and the lungs.

So when I am told that I ought to use the phrase 'childless' to appease some mothers, I wonder why? Why should I walk around defining myself constantly as lacking, as less than, as having a piece missing?  But maybe, in fact, we don't need a term for us as all, because we don't really exist. We are like the wallpaper that you might have noticed at first, but after a while you've forgotten whether it has flowers or polka dots. I don't need a word for my lack of children because my deep grief barely exists, it is invisible to most - even those have been told about it repeatedly - and in a sense, it's as though I don't really exist either.

Wednesday, 14 September 2016

A Letter

Dear child of my heart,

I’ve written a lot of letters over the years, some to dear friends, some to people I had never met, and others to the nebulous “to whom it may concern”, but apart from writing to Santa in my childhood, I’ve never written a letter to someone who didn’t exist. But in a way, you do exist. You are my child, the child of my heart. You were never conceived and no one knows you in the flesh, and you will never have a fingerprint or a social insurance number, but I know you. You exist in my mind and in my dreams, and most importantly in my heart.

Child of my heart, I am sorry we will never meet, but know that I imagined the day of our meeting a thousand times. The way I would hold you and weep when I finally saw your face. The way your dad would be in awe. How we would send the news to the far corners of the earth that you were here at last, our baby.

I am sorry that I will never carry you in my womb. I’ll never know what it felt like when you kicked me or be able to complain about your pressure on my organs. I’ll never know the agony of pregnancy nausea coupled with that tiny bit of joy because it means you’re still there, holding on. I’ll never touch the place on my middle where you are poking your little arms or legs or butt out, never be able to sing or speak to you, to be the first voice you will recognize.

I’m sorry that you will never be able to show me the depths of love that exist in this world or challenge my innate selfishness by just being a person who needs me constantly. When other women talk with knowing nods about how motherhood changes a person, I’ll think of you – my nonexistent child – and know that I would have been changed too, and maybe I already have been – but in ways that none of these women would understand if I told them.

I’m sorry that you will not know your loving grandparents. I’ll never be able to look at your expression and see my father or mother, my younger brother or your own dad staring back at me. I won’t come around the corner and be overcome with emotion when I see you moving your arms in a gesture that is just like your grandma. I’ll never know if you would have taken after me in my musical abilities or my husband with his mischievous spirit.

I think of all the experiences we were going to share. I was going to read to you, first Goodnight Moon and Paddington Bear, later Anne of Green Gables and the Narnia books. I was excited to see you experience beloved characters for the first time. We would take you to the park, to see you soar in the wind on the swings and use the slide with glee, knowing that mommy would always be there to catch you at the bottom. We would go to the cottage, and you’d splash around on the same beach that I did when I was a child, and we would race to the dam, pick raspberries, and mark your height each year on the side of the bedroom door jamb. Then I’d show you on another doorway how tall I was at that age, and your uncle too, and we would compare.

I was going to watch you grow up, experience hardships and pains that would break my own heart as I stood by but couldn’t stop them. One day, you wouldn’t like me that much, but we’d push through. I would make a million mistakes and say all the wrong things, but in every moment, you would at least know you were loved, so loved. If you ended up like me, you would want to spread your wings and fly far, far away. I would stifle tears and let you go to forge your own path because I too once (or twice or three times) stood at airport security with a big bag, waving at my parents as I went off for adventure in new lands. As I watched you go, I’d lean on my husband and let the tears out, and he’d remind me that you were strong and would have the time of your life.

People will say that you can’t mourn someone who didn’t exist, but to me, you are real. You will always exist. You are my child – the child that never was and will never be – and I long for you each day with a visceral ache. I will miss you every day until it’s time to close my eyes and leave this world for new adventures. I will always love you, child of my heart.

Saturday, 3 September 2016

Long weekend musings on summer and infertility and grief

It's that time of year now when the temperature drops in the evening, kids go back to school, and even though the leaves are still green, we know it's only a short time before the autumn will be back in force. It feels like every day, someone else wants to talk about how the summer has just flown by, and where did those months go? To be honest, I'm finding this difficult. My summer has not flown by. My summer has been painful and grief-filled. I struggle with the balance between being authentic and not wanting to alienate people with my grief.

I haven't updated in a while about our infertility journey, so here goes: In the spring, we decided to head back to the clinic to try again. The timing made sense as I was finishing school, but did not have a job lined up, so my schedule was free enough to allow for the myriad of appointments without being too draining. This new procedure required me to give myself daily injections for the first 10-12 days of my cycle, which was pretty daunting, but I quickly got used to it. Anyway, the long and the short of it is that we tried this for several cycles, and it was unsuccessful.

Gil and I now find ourselves in a quandary. There are other possible options, if we want to be more aggressive. People tell us we have to try everything, that it will certainly work one time. On the other hand, the reality is that isn't true. There are many people who try everything and still end up childless. Success rates for IVF and surrogacy and all that stuff are actually not nearly as high as people think. Moreover, I am losing so much of myself due to depression related to infertility. I miss the person I was. I don't want to live through three more years of constantly oscillating between optimism and grief. When I went in for my last blood test towards the end of July, I had this sense that I was done with the clinic, that I just really did not want to go back. But the other option, the one that says we will never hold our child in our arms, is almost unthinkable.

So now we grieve. I grieve the life I imagined, the exhausting days of looking after little ones, the hectic years of school-aged children, the lonely days of seeing teenagers fly the nest, the moments when I would see my husband or my grandmother in the fact of my own child. I don't know how to imagine a life without children. I don't compute how I will never be a grandmother.

We grieve alone. People do not understand this or even recognize it as grief. They want to tell us how we can have such a great life without children, as though it's easy to just change course. As though it's not the greatest tragedy of my life to lose the future that I imagined since I was a young child. So I have to smile a few dozen times and say, "Yes, summer is over. It's gone so fast," when really, it was slow and painful and sad. There were no bike rides with kids, no water parks or camp outs or walks to the park. My cat died. My dreams died. Yes, there were fun moments, like when I graduated and a brief trip to Spain in June, but mostly, 2016 has been a summer of grief.

Do I believe God is good throughout this journey? Yes. Somehow I do. Somehow, I trust that He can redeem these awful years, that He can put beauty into our darkest moments. I fight with Him daily. I ask Him why. I ask Him where the Church was, how it could be that His people were not there in the moments when I was begging Him to let me die instead of giving me this childless future. He does not answer, but He tells me to trust, so I have faith that one beautiful day, the pain will make sense and the tears will be wiped away. Until then, we grieve.

Sunday, 17 July 2016

Three Years

This week marks two things: It makes seven years since my first date with Gil, which was in 2009. It also marks three years since we started trying to have a child.

Celebrating one year of dating, in 2010. I look so young!
Three years is a long time. If you're in my shoes, and you're involved in infertility communities, you might be tempted to think that it's not so long when faced with others who had longer journeys, but one thing I'm learning is that it's okay to feel like my three years have been an eternity. Three years is enough to get a Bachelor's degree without Honours, or even with Honours if you do a lot of extra grunt work. It's 75% of the way through high school in Ontario and also 75% of the term of an American president. It's apparently the life cycle of an iPhone, according to Apple, unless you're someone like my dad who always needs the newest model. It's the length of time audiences had to wait between episodes of the Star Wars franchise, both the original trilogy and the much lamented set of prequels. It's 36 months - and if you're infertile you probably felt the passage of each month with a heart growing heavier each time. It's 156 weeks or 1095 days, which makes approximately four full-term pregnancies back to back. You certainly feel that the most when you're infertile, because you probably have friends who have had more than one child while you've been waiting.

My friends with young children frequently say things like, "I can't believe he'll be 2/3/4! The years fly by so fast." On the contrary, I feel like the years have crawled by in my childless life as I've watched infertility mark every aspect of my life with sorrow. For the past 2.5 years, ever since we were officially labelled as infertile, there has rarely been a day that didn't hurt. There are no mornings when I wake up and don't remember how much I want to be a mother. I never see a pregnant belly without feeling a tiny bit sad. Someone told me recently that she is afraid to ask her infertile friends about their issues because she does not want to reopen a wound. I told her that what she's missing is that for us in the journey, our wounds never close. I feel like the walking wounded, and every moment that I'm smiling or laughing or going about daily life, it's because I've learned to live with the constant ache. I've learned that most people - even the ones that say they care - do not want to hear that you are wounded. They want you to pretend it doesn't hurt. Trust me, time does not fly by when you are always nursing an open wound.

I want to end this on something positive. I'm sure that I've grown in some positive ways in these past few years. I hope so, anyway. I've obviously gone back to school and traveled and made new friends. When I look at these years, though, I grieve. I'm sad that half of my marriage has been marred by infertility, that we cannot remember any more what it's like to believe we'll be parents. I grieve the relationships I had with friends back when I was sunny and emotionally able to support others, back before I greeted each morning with tears. I grieve the big family that I was going to have, because even if we do conceive, we certainly do not have the time to try again several times. I weep for the moments that I imagined and may never experience: The first time I would feel my baby kicking; the look in my husband's eyes when we would find out we were expecting; the joy of seeing my baby on the ultrasound screen. I grieve the self that I feel like I've lost. My pastor recently said that we rarely see God's hand in the present. It's when we look at the past that we are aware of where He's been working. I hope that one day, I will look back on these three years and see the sparks of light that I missed, because most days things still look very dark.

Wednesday, 27 January 2016

Infertility and Depression: Let's Talk

I am writing this as part of the Bell "Let's Talk" campaign, which aims to reduce the stigma of mental illness.

Let me give you a hypothetical scenario: Imagine that for about 18 months now, your friend has been intermittently complaining about pain in her leg. She doesn't mention it every time you speak, but often enough that you realize it's an ongoing problem. You start to realize that she's actually cut back on social engagements due to this pain. She has not seen some of her friends because they always want to go out and do active things, but she can't go with them because of this pain. She seems to have given up on it ever getting better, and you get the sense that this is something that troubles her most days, if not all the time, and it seems to be getting worse.

What would you do? If you were her sister, or her close friend, you would probably be nagging her to go to the doctor. You would point out that this could be something serious, that you are really concerned. You might even offer to take her to the doctor yourself. If you knew a specialist, maybe you'd call them to try to get her in. You wouldn't just accept it or tell her to figure it out herself.

Yet, friends, this is what we do with depression. It happens all the time. It has happened to me. I cannot tell you how many people that I have talked to in the past 18 months, how many times I have said that I'm sad, that I cry most days, that I feel hopeless, that I struggle with feeling like I've lost many of my friends because I can't relate to their lives as parents. Some people act sympathetic, while others are clearly uncomfortable. Even my former doctor said she was concerned that I was showing signs of depression, but her response was to tell me to come back in 6 months and we'd talk about whether it was worse. (This is part of the reason why she is my former doctor and not my current one....) Yet no one ever stepped in. A few people suggested counseling, and one promised to follow-up with some contacts and never did. I'm not saying this to blame people, but rather to point out the difference in how we treat depression versus physical illnesses. If I had cancer, all of these people would be bending over backwards to help, bringing meals, driving me to treatments. I know this because I know and love these people. But when it's mental illness and not physical, we step back, because it feels so personal and we don't know how to help. As a result, those who are suffering in darkness get the message that it's "their" problem and that, as one person recently told me, "Only YOU can figure out how to help yourself." Is that true? Maybe, but would you say that to me if I had diabetes or cancer? Probably not.

The truth is, infertility and depression go hand in hand. Lots of sources corroborate this. It is hard to describe how debilitating the emotions surrounding infertility can be. There is something spectacularly awful when you fail at a reproductive norm; it's like you have actually failed at being a human being. Then you go into tests that are often embarrassing, and you often end up with hormonal supplements that play with your emotions. To add to that, for women especially the culture around motherhood is all-encompassing. It can be hard to make friends, because after a certain age, women's lives often revolve around children. This leaves childless women and single women out. It's hard. It's isolating. It is honestly a recipe for depression, and yet so many people brush it off with comments like, "You don't realize how hard it is to have children" or "You'll get there someday." Maybe, but a person struggling in darkness doesn't need someday, she needs help right now. She needs a hand to help her get out of the pit.

"Why can't you ask for help?" many will ask. "Why can't you pull yourself out?" The answers are as varied as the sufferers. Sometimes we ask, and are rebuffed, so we learn not to speak up. Sometimes the pit is too deep and too dark. When you are infertile, sadness and futility can easily become the norm. It's not as though I went to bed cheerful and woke up deeply depressed. My walk into depression was like walking into the ocean, where before I knew it, I was in over my head. It became normal to feel low, and then to feel sad. Treatments were difficult, and disappointment came month after month after month. After a while, it seemed incomprehensible not to be sad, to think that I could ever be happy when the dream I had had for my whole life had collapsed. After a while, it felt like the pit was all I knew.

If you are in the pit, please please keep speaking up. You may have to scream and shout, but do it until someone listens. If no one else will listen, I will. Email me if you need to. Being depressed does not mean that you are weak or that there is something wrong with you. It just means that you need help finding the light.

If you have a close friend who is infertile, really listen in to what he or she is saying. Don't ignore signs of depression or other mental illness. Come alongside others, urge them to see a doctor or to look into counseling, and don't let it slide. Many people like me are just waiting for someone to really see them, to realize that they are losing part of themselves, that this isn't normal. Don't let it happen without a fight. Sometimes the most loving thing you can say is, "You need help. Let me get it with you."

What's the end of my story? I don't know yet. I've seen two counselors, and neither one was a great fit for me, and I wasn't able to get another appointment until the end of February. I am strong enough to advocate for myself, but I know that not everyone is, so I want to keep the dialogue alive. "Let's Talk."

Tuesday, 29 December 2015

2016: A New Hope?

2015. I don't have words to describe this year, or rather I do, but I'll spare you because they are mostly curse words.

On January 1, 2015, I wrote the following in my journal: "The word that comes to my mind for this year [2014] is loss. Loss of Bruce [my oldest friend's father who passed away in December of 2014]. Loss of my dignity. Loss (sometimes) of the confidence I had that my friends and family would be there in my hours of deepest need. Loss of hope. Loss of faith in medical science. Loss of a dream and of subsequent dreams, the idea that I could ever be a mother of more than one child, of the idea that giving up my career was the most logical thing to do. Loss of unity with my husband. Loss of control over my body and emotions. Loss of the ideal that if I tried hard enough, my dreams would come true."

When I read those words, I just want to go back to my January 2015 self and give her a hug, and say, "Oh honey, the losses will just keep on coming." The hits have been one after the other this year. I lost a dear friend in February, leaving a wound in my soul that continues to ache. We had a massive family illness in the winter, which led to a terrible misunderstanding with my father. We made up and are on good terms again, but words were said that cannot be unsaid, and it still smarts. School was hard, several friends lost their parents, friendships were tested and found wanting. Close family members came to the brink of divorce, reconciled, and I've only just learned today that they are splitting up for sure. We are still infertile, and I have lost hope that we will ever be parents. My heart hurts. It has kept hurting, this whole long year. Then as I tried to embrace the holidays and find the joy in it all, I found a dead raccoon in my yard and spent Christmas Eve shoveling it into a garbage bag to haul to the curb. It seemed somehow symbolic of the year that was. Needless to say, 2015 has been nothing like I expected.

Were there joys? Of course. I met new friends. I did well in school. I attended a close friend's wedding. There was a new Star Wars movie. We adopted Neville. We laughed and loved and lived. But it still hurts.

So, now it's almost 2016, and I am afraid. I went into the last two years thinking that things would get better, and instead they just got worse and worse and worse. To be brutally honest, I am sad every day, and I know that even the best circumstances and a fantastic career will not heal the child-shaped hole in me, but at least I would like a reprieve from really awful stuff happening. I go into this new year with trepidation, wondering "How long, o Lord?", wondering if I will make it to see 2017 without losing myself, the loving and wondering and rejoicing parts that I know are still in there somewhere.

However, after getting even more bad family news today, I decided to give myself a pass from getting anything useful accomplished, and just sit in bed this afternoon watching the original Star Wars. I realized, thinking it over, that Episode 4 is titled "A New Hope". So maybe it's there, somewhere, that hope. Maybe I can find it and grasp it, if even for a little while.

Happy New Year, friends. May joy find you wherever you are.

Saturday, 12 December 2015

Infertile at Christmas

I'm going to be honest here: I'm struggling with Christmas. I used to love everything about Christmas: The stockings, the tree, the nativity scenes, carols at church, snow, evening church services, coloured lights, pretty much everything except eggnog. Even when I was working in Ottawa and had to drive to Toronto at noon on the 24th, I would do so with joy because it was Christmas. The last few years, though, I find myself wishing away I could fall asleep in November and wake up in January. This isn't just wanting to get past my exams without writing them (though that would be nice). It is more a factor of the constant pain of infertility, which tends to feel more overwhelming during the holidays.

In the first place, Christmas is a time when we talk about families. I get bombarded by cards with pictures of everyone's beautiful children, often with one more child this year than last. I hear ads on the radio talking about what to get my kids for Christmas, or even what to get my husband to show him that he's a great dad. (I had to change the channel for that last one as I burst into tears on the highway.) Next to Mother's Day, I find that Christmas is the time of year when I am most reminded that I am not a mother, that I don't have a family, and that I don't fit in.

Christmas is also a time when we talk about baby Jesus. A lot. I mean, yes, Christmas is increasingly secularized, and you can get through it with minimal exposure to a manger scene, but you get what I mean. Yes, I know, the original Christmas story is about two people who were shocked and not ready to be parents and who had to start their family in terrible circumstances. Yes, I know it's Jesus and not some random baby. It's still images of babies, here and there and everywhere. There are still days when I see that nativity picture, with Mary lovingly bent over the infant Jesus, and my heart aches for the child I wanted to have, the baby whose crib I would lean over to sing lullabies, the one that I will never have. It still hurts.

Mostly though, Christmas marks the passing of time, and the whole holiday season is a chance to take stock in the year. This year sucked. Sorry, but it did. I lost a dear friend. I lost others in my life. In our family, we had serious illness, marriage separation, and conflict. In the world, we had some pretty bad things as well. I find it hard to look ahead and say that maybe 2016 will be better when I remember that in 2012, and 2013, and 2014, I went into the holidays thinking it might be my last Christmas without a baby on the way, that the coming year would bring life and joy when in fact it has brought increasing sadness. I feel like infertility has taken my ability to look ahead. I used to be one of those people who would hear about Jesus coming back and think, "Not yet. I have so much left to do." Now I understand why people yearn for His coming, because I find it so hard to find the joy in this life and it doesn't sound like such a raw deal to leave it behind.

I usually try to end posts like this on some kind of inspiring note, like, "Here's how I'm holding on to hope" or "God is still good". I don't know how to do this. I haven't given up on life and faith, but I don't have it in me to pretend that I'm not drowning each and every day. Pray for me this Christmas. More than that, pray for those around you who are lonely. Invite the childless into your home, and those without families. Remember that for many people, the holidays are hard. Love your neighbour. Share your joy.

Friday, 27 February 2015

Rest in Peace, Blaire

On Sunday morning, I woke up expecting a packed day. I worked on a project for school, went to church, stopped by the mall to take out money from the bank machine, and ended up the day at my friend's house watching the Oscars. I had no idea that the day would take a turn in the saddest possible way.

I found out late Sunday evening that my friend Blaire had passed away. She was 35 months pregnant and the mother of a three-year-old girl. She suffered a sudden heart attack at age 27. Her unborn son died with her.

There are no words for this kind of a loss. All griefs are hard, of course, but when my grandparents passed, at least we could remember their long lives. This one hit like a sucker punch. I am sad that I will never see her outspoken political posts on Facebook again, or chat about life's insignificant details like Oscar fashion or what kind of milk we buy. I am sad for her husband, as he grieves these terrible losses and tries to keep it together for his young daughter. I am sad for Rowan, who will grow up without a mother. I am sad.

Blaire was a tireless advocate for progressive politics. She longed for a day when everyone had access to adequate medical care and education. She adored her daughter. She loved Disney. She was Blaire, and I loved her for the person she was.

This loss has put so much into perspective. All the trials of this week - which included papers, presentations, and a broken furnace - seem a little less daunting in the light of such a loss. I've been holding Gil a little tighter each night. I've realized that although I want to be a mother more than anything, I don't want to waste my days dwelling on what is not. I want to live. For Blaire.



RIP Blaire and baby Cassius

A few of Blaire's friends and I have put together a Go Fund Me page to help her husband with funeral expenses, as well as to save for Rowan's education. If you're interested in donating, the page is here:
http://www.gofundme.com/emersonfamily

Sunday, 15 February 2015

It Doesn't Get Easier

The other night, I was watching television and ended up full-on weeping. Like tears streaming down my face, nose running, etc.. It was awful. What were we watching? Not Parenthood (that cry-fest) but the new show called Forever. There was an episode where Henry and Jo were investigating the death of a deposed king of a (fictional) country. They interviewed the man's wife, and she spoke emotionally about how it turned out they could not have children. Even though it had been decades, she still spoke with obvious pain about finding out she was infertile. Friends, I know television is not real, but this program killed me.

As we've gotten further along in our infertility journey, I keep hoping in vain that I'll wake up and feel better about it. That I'll stop wanting it so badly, the way I stopped wanting to go to law school or play keyboards in a band (yes, really). It doesn't seem to happen that way. Some things do get easier. I stopped obsessing over random symptoms ages ago, which is helpful to my mental health. I rarely cry when some well-meaning acquaintance asks me when we're going to have kids, but the ache is there every day. I never close my eyes at night without thinking and praying and wishing for a child.

I can't help thinking that ten years from now, twenty-five years from now, fifty years from now, this ache will still be there. It's gotten harder to believe that we might conceive or adopt a child, but even if we do, I'd imagine the longing and grief of this period will be hard to forget. Thirteen years ago this week, I was a lost and angry young lady, alone in a foreign land with my family falling to pieces around me, and I grasped at a light. I sought for God and found Him. But when I think of that time, it still hurts. I cannot forget the sense of being adrift and alone. Time provides perspective, but it doesn't heal all wounds, no matter what the saying claims. I can only grasp at hope that the light is coming soon this time around.

Source: https://www.pinterest.com/pin/470485492298261649/

Monday, 28 January 2013

On Grieving

Grief has the potential to smack you across the face when you last expect it.  We think we get over things, that we move on and forget, that we're only strong when we've conquered feelings of loss, but it's not true.

This morning started out poorly as I watched last night's tearjerker episode of Downton Abbey, but then I went on to face the day just like any other.  Oddly enough, it was the smallest thing - unclogging my drain with a wrench that my former step-father gave me years ago - that drew a wave of grief and sadness over me.  I don't think I'll ever feel free to share the details of what happened with my step-dad, because it's more my mom's story than mine, but the gist of it is that he was a part of our life for many years, and his leaving us was a drawn-out and messy process.  Despite that, I miss him sometimes.  He stood alongside me and loved me when I was not very lovable.  I grieve that the old closeness with him is gone, even though I know it was best for everyone that he leave.

Dealing with others' reactions has been hardest part of dealing with my step-dad's loss.  So many people talk as though I could just flip a switch and stop loving him.  As though all of the bad that happened had made me forget everything good that came before.  By that way of thinking it is ridiculous to grieve him now, many years later.  On the other hand, feelings often just don't make sense, and to force them into logic is to suppress my own healing.  So on days like this, I let myself cry and grieve, knowing that this, too, shall pass.  Despite what some well-meaning Christians may claim, having the joy of the Lord does not mean I no longer experience sadness.  Rather, I seek to enjoy God's presence in the worst of times.  I am always comforted by John 11:35, when Jesus wept at the death of Lazarus, because it shows Christ's humanity.  He knew Lazarus would live, yet he wept for the pain Lazarus had undergone and for the grief his friends were experiencing.  And you and I can weep too when grief overtakes us, knowing Him who shares our burdens and sorrows.